VNS!!!

Why do I wait so long to post updates?

In November (1 day after his 19th birthday), my son received a Vagus Nerve Stimilator. This devise was implanted in his chest as he is “medication resistent”. This means the 5, yes FIVE, medications he takes, do not control his seizures.

So where are we at with the device?

I am happy to report that the Grand and Petit Mal seizures seem to be under control. However, the Absence seizures are still lingering. Sometimes he knows they happen and sometimes he doesn’t. It’s so difficult to watch. It’s almost lab time and the Neurologist is wondering if his meds need to be adjusted.
It’s difficult for him because he cannot drive, almost every friend has gone away to college, he’s tired a lot, and we’ve discovered that the heat triggers seizures.
But he powers through and acts like it doesn’t bother him.
All the things I wanted for him, that he wanted for himself have changed, been remastered.

But we power through and live each day as best we can.